I actually heard this rumor that my oncologist was leaving from an elderly lady in the waiting room and when I asked her further she pressed her finger to her lips and said it was likely a secret.
My oncologist sent me a letter but it went to the wrong address, my home address. I've told the folks at Rosewell repeatedly to send my mail to my parent's but it keeps not happening.
Chemo#4 was so hard on me, I've been so sick. I was looking for support & sent the note.
I've been sick with a cold for over four weeks and had severe laryngitis last week. I tried email but apparently now that my oncologist left, no one else finds email an acceptable form of communication so I was basically ignored.
This is what I sent:
I hope you can help me. I can't call, laryngitis. I need emails for further contact care. I was never given emails of new contacts. thank you.
see note I am trying to send:
I need more support. I am not doing well. The last chemo wrecked me. I didn’t get a card for the PA that met with me and I no longer have an oncologist as she left and I have no new contact info for help.
Respiratory Issues/Laryngitis
I’ve had a cold for over four (4) weeks. I cough all the time. I have severe laryngitis for the second time. My throat feels like there is a rubber ring in the back of it. My throat wasn’t even looked at the last time I was in after I said I’d been sick and had laryngitis. I do not have a fever.
Insurance refusal for mouth sore meds
I have more sores in my mouth. My insurance drug provider wouldn’t cover the prescription for the mouthwash unless they get a note from the doctor stating it’s a medical necessity.
Constipation, hemorrhoids, bleeding
I have very bad constipation and now have anal bleeding. I tried a stool softener, eating apricots & prunes, not working.
Reflux
I am having very bad reflux and don’t know what is causing it. I tried Pepcid, not working. I’ve heard Ranitidine helps with this.
Cold Sores
My lips are swollen and I think I am going to get a cold sore.
Sleeping
I continue to have sleep issues, mostly I believe because of the hot flashes and wonder why I was not prescribed Ambien CR - a time released sleeping pill that aids many that have the hot flashes during chemo like I do that wake them up.
Steroids
The first two nights after chemo, I had maybe one (1) hour sleep from 6am to 7am even with 2 ativan at 10pm and 1 ambien at 5am so I did not take the steroids the last day. I finally slept. I am so glad I don’t have to take those any more on this next four doses of chemo.
Glutamine
The PA I met with whose never I can’t even remember because I am so sick told me that Glutamine has no proven effectiveness for neuropathy, yet I found these studies.
Reduction of Paclitaxel-induced Peripheral Neuropathy with Glutamine
Oral glutamine is effective for preventing oxaliplatin-induced neuropathy in colorectal cancer patients.
Oral glutamine is effective for preventing oxaliplatin-induced neuropathy in colorectal cancer patients.
Again, I could use some help. I am displaced. I have no doctors where I am (Jamestown, NY) to call for an appointment. All my doctors are in NYC. I was counting on my oncologist for help.
Rosewell's website is difficult to navigate. I can't find emails for anyone else I might contact and I can't call. I have laryngitis.
xxxxx Real Name & ID removed
PS I finally found Dr O'connor's info on another website not Roswell's. I hope it works. I'ved added a few more hoping this gets through to someone
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